Learn More About Autism
Autism is a neurodevelopmental disability that is believed to occur in about 2-3% of our population. Observable differences such as those in communication, social behavior, and need for security reflect differences in the brain. Every autistic person experiences autism differently. Learn more by visiting these links.
- What is Autism
- About Autism
- Autism 101
- Books About Autism
- The Meaning of Self-Advocacy
- Autism and Co-Occurring Disabilities
Connect With Other Families
If you have a family member with autism, a great way to learn more about supporting them is from others with experience doing it. Connecting with families who have an autistic family member provides sense of community, belonging and understanding. In person or online, you can create a place where you can discuss similar needs, help each other by sharing information and resources envision all the possibilities for your child. This support and friendship helps navigate your journey and is necessary for maintaining good health.
- Start Here Guide
- Family Support Group List
- Family to Family
- KY Special Involvement Network
- 13 Necessary Steps for Parents
Get to Know Autistic Self-Advocates
We believe autistic adults are experts in autism. Autistic adults can help you understand autism, give you suggestions for or ways to help to you or your child, and/or be a mentor as you or your child grows. Autistic mentors show you or your child that it is okay to be autistic and model autism advocacy and self-determination skills. You can connect online (chat rooms, social networks) or at local autism groups.
- Autistic Self-Advocacy Network
- Kentuckiana Autistic Spectrum Alliance (KASA)
- Autistic Women and Nonbinary Network
- A Curriculum for Self-Advocates
Establish School Plans
School plays a major role in a child’s life, from early years through adolescence. Whether your child is already attending or just getting started, planning for a strong education is key. Social, communication, thinking, or sensory differences can make school more challenging—but your child has rights. The Individuals with Disabilities Education Act (IDEA) may require your child’s public school to evaluate their strengths and needs and create an individualized learning program. Section 504 of the Rehabilitation Act requires any school that receives
federal funding to provide accommodations and support to students with disabilities so they can fully participate in school.
- Kentucky Early Intervention System
- Kentucky State Funded Preschool
- KDE Autism Guidance Document (June 2023)
- KY-SPIN Publications – IEP & 504 Infographics
Seek Desired Supports and Services
Each autistic person is unique so there is no one-size-fits-all support list for autism. Families and individuals may choose from a wide array of possibilities depending on their own needs. These supports and services provide access to the expertise of health practitioners to help you and/or your family member enjoy a full and meaningful life. Supports can help to improve communication between autistic and non-autistic family members, facilitate belonging in the community, or recognize sensory patterns or preferences. Services are not intended to make autistic people less autistic. Ideally, services provided should support areas of need and bolster strengths towards the client’s own goals. Professionals can also help people to understand autism, advocate for themselves and others, and learn skills in ways that work best for the person’s learning styles.
Explore the Larger Disability Community
Autistic people are also part of a broader community of people with disabilities. These resources will help you connect to other communities of disabled people as well as family advocates. You can engage with these communities to build understanding of disability and to share ways to navigate systems of support. You can also advocate to make society more accessible and welcoming to all people with disabilities.
- Disability Rights Network
- Disability Rights Timeline
- Disability Justice
- Principles of Disability Rights
- American Disabled for Attendant Programs (ADAPT)
- The Association for Persons with Severe Handicaps (TASH)
- New Disabled South
Support Participation
There are common challenges families experience in their daily lives. These tips and toolkits can help support the needs of your autistic child to participate in activities of daily living.
- Sleep and Autism
- Toileting
- Feeding Difficulties
- Dental Care
- Blood Draw
- Safety
- Transition to Adulthood: A Healthcare Guide for Youth and Families
Additional Resources
Autistic people may face challenges in daily routines. These tips and toolkits are provided to help you and your family address some potential challenges with activities of daily living.
- Kentucky Advisory Council on Autism
- Supported Decision Making
- KY-SPIN Youth & Adult Suite
- Transition Resource Sheet
- Life Course Tools
- Family & Youth Employment Checklists
- Medicaid Long-Term Supports
- Resources and Supports for Families (KATC)
- Kentucky Protection and Advocacy
- Vocational Rehabilitation
Please complete KYACA Early Childhood -Resource Sheet Survey